This is a difficult read Jacqui - we were so reliant on Kim for everything - news, food….. Found the phone calls so difficult as he was speaking in Danish and we had to wait until he came off the phone and get an English version.
Yep they had a hard time working out what was going on. They had a stereotype in their heads of what an NF patient looks like and I didn't fit it at all - I was a total outlier. I am so grateful that they worked it out in time!
To be honest I didn’t even realize that I needed to be scared. What stumped them was likely that I simply didn’t fit the more common profile for people likely to get NF (that’s also what one of the doctors told me), more on that when we into the science chapter of the book. Plus the other big one was I had no abrasion, cut, puncture wound or any other obvious route for the bacteria to have gotten into my body. I’m just glad that they did work it out before it was too late - sadly many NF patients don’t survive as nobody works it out quickly enough.
This is a difficult read Jacqui - we were so reliant on Kim for everything - news, food….. Found the phone calls so difficult as he was speaking in Danish and we had to wait until he came off the phone and get an English version.
I’m so tense reading this. I can’t believe all the different departments you were sent to.
Yep they had a hard time working out what was going on. They had a stereotype in their heads of what an NF patient looks like and I didn't fit it at all - I was a total outlier. I am so grateful that they worked it out in time!
What a terrifying ordeal, Jacqui. I wonder WHY they dismissed the idea that it could be NF?
To be honest I didn’t even realize that I needed to be scared. What stumped them was likely that I simply didn’t fit the more common profile for people likely to get NF (that’s also what one of the doctors told me), more on that when we into the science chapter of the book. Plus the other big one was I had no abrasion, cut, puncture wound or any other obvious route for the bacteria to have gotten into my body. I’m just glad that they did work it out before it was too late - sadly many NF patients don’t survive as nobody works it out quickly enough.